Monday, June 11, 2012

I got nothing...

I didn't mean to be dramatic by not posting, it's really just a question of I've really got nothing to say.  And when I do say something, it seems to inappropriately tempt fate and I've developed an unhealthy superstitious attitude.

Still hanging out in patient.  Was pretty much positive we were delivering within 24 hours last Monday.  Dilated more, regular 2-3 minute contractions for hours and the like, but then it all stopped.  OB, nurses, other OB and the like were all also convinced, so no clue what really happened, but I like it.

Good news is that the event that we think precipitated that preterm labor episode was the movement of Lefty from transverse to breech.  And in the process, she seems to have fixed her cord issue.  Free your leg and your heart will follow... We actually have not seen any of the recurrent variables or bradycardia episodes since that day and that has us at a week now.  This is good news!

But with two cervix changing episodes to date and an irritable (the medicos for some reason don't agree with the term bitchy or even whiny) uterus that throws fits at such things as lying flat on back, too much fetal movement and not having a sufficiently empty bladder, they've still got me hanging here even with the improvement in the fetal strips. 

We should have a growth ultrasound with their BPP tomorrow and I'll try to remember to be a good person and update with that.  Because notoriously accurate ultrasound weights are fascinating, right?  Does sarcasm convey in writing?

Other news is the movement on Lefty and then Righty deciding to get in the game and become breech as well (breech-breech for the win) has resulted in belly dropping from it's round ball appearance to looking like a true, sagging beer belly.  Kinda fun.  They are definitely bigger than I was when Trajan was induced at 38 weeks and this is pretty amazing to me.

Still getting a lot of work done for work here and I think that's crucial to my sanity.  Seeing the boys and exercising half-hour wheelchair privileges with them to go on "adventures" is even more crucial to my sanity.  An amazing and patient doctor plus some truly wonderful humans as nurses also can not be underappreciated.

So, life is going well.  Not ideal, but good and we are blessed to be experiencing it.

Last thought: it's really starting to look like we may end up with four children.  Four children living in our house.  Four kids, really?!?

Wednesday, May 23, 2012

Someone tell me to shut my trap

Apparently I did not learn a life lesson from this post.  Note that it was written on 12/21 and Chiron was born 12/23.

My putting into writing that she had had no more decels and just some slightly extended variances may have been a bad idea.  I'm not really very superstitious by nature, but both L&D and the NICU kinda make me so.

So, can you guess what happened between the last post and now?  More variances plus a couple decels.  They were V's, not W's, which I'm reassured is very good and she recovered on her own each time and is still achieving accelerations and the like, but NOT what we are looking for.   She got down to about 90 from 150 or 160 and then recovered back to 150 or 160 over a couple minute period on one of them and I didn't get the specific numbers on any others.

Her line does look crazy compared to her sister's. 

Nothing has changed, just the clock to feel confident that her positioning has resolved itself and she is not at risk has reset.  Nothing to be alarmed about.  Nothing to overreact to, but seriously?  Just STOP doing that, little miss lefty.

I am finding it much harder to actually work while monitoring, so I'm going to celebrate the positive side and declare this an opportunity to nearly guilt-free work on getting caught up on my blog reading!

Thank you all for keeping track of us and sharing your thoughts and jokes and experiences.  Really does mean the world.

Oh, and Tanika, the uterus of bitching is totally behaving, so I think we may need to get a nickname for little miss attention magnet...

In which I ruminate...

I just turned off the alarm for the maternal heartbeat on my monitor.  It's limits are set at 50 and 120 and I go up into the 120s pretty frequently, typically this is when talking to someone, and so it was a bit annoying.  It's probably a bad sign that I'm more familiar with the machines around here than some of the nurses.  I thought about changing the upper limit, but figured just turning it off would make for a simpler return to standard state, though I believe it does reset anytime it is unplugged as well.

Why I think this fact is worthy of sharing with you, I don't really know, but eh, I never claimed to make sense! And perhaps an even better question is why I think I need to share a picture of the monitor, but I do:
And in the style of live blogging, the whole story changes!  The pulse ox cord apparently had some issues.  I do like that none of us yesterday or last night thought to actually look at the clock and take my puse, we just accepted the 120s to 150s.  My nurse today, who is a favorite and definitely one of the most competent, looked at me and declared that my pulse was not that high, took it by hand and changed out the part. 

See, isn't my life fascinating?
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I have decided that the L&D floor is a time distortion field.  Came in for three hours, stayed for 10 days.  Right now, I'm still here from my two hours of monitoring Monday night.  There had been some talk about letting me go this morning, but while there haven't been any deceleration events (which are apparently measured in minutes), there were more variables and with greater drops than the current on-call OB (who is the doctor I had for four weeks while mine was on maternity leave last time) is comfortable with.  She sounded like she wasn't concerned per se, but isn't feeling sufficiently comfortable with Lefty's strips yet.  It's now a different on-call doctor, my OB doesn't work Tuesday or Wednesday as she has three small children of her own, but today's doctor said that the next one may discharge me after 6am tomorrow
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I know I'd mentioned that I found the changes in the NICU in the last 17 months kind of fascinating when the neonatologist came down to talk, but I've also discovered another interesting change in the obstetrics side of things.  Last time, they didn't repeat steroids.  In the last few months, they've aparently had their thinking come around to be more like a decade ago and they do repeat if it's been around four weeks or so and they think there's a reasonable chance of delivery in the next week or so (this time they were thinking possible c-section for distress instead of PTL.  read as NOT MY FAULT for once).  So, I had two more doses of Betamethasone Sodium Phosphate with Betamethasone Acetate Monday night and last night.  It's possible they will do one more round if I were to go into labor or we were removing the babies for distreen reasons between about 32 and 34 weeks.

By the way, random note, but these shots are much more pleasant in the bum than in the thigh.  Four of my six doses ever have been thigh and I highly recommend taking this route.
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I am on continuous monitoring until we are assured about Lefty's strips and I'm oddly proud of my ability to come and manage.  Many people have a lot of trouble because you can't really get much continuous sleep as anytime a baby comes off the monitor, the nurses have to come in and put them back on.  I am apparently very good at noticing them come in, confirming that they don't need me to reposition and then go back to sleep while they are moving straps and monitors and all of that.  Having a real bed instead of the transformer delivery bed also makes a huge difference.  When they were talking about running continuous monitoring, I in my own mind thought that I could probably only make it about 100 hours before I started to lose it, but I really don't think this is the case.  I think I can stay on as long as necessary without too many issues.

Cool rag doll look!
Biggest problem is needing to keep the pulse ox on 24 hours a day as it makes it much harder to work on things for work or even play around on the computer/phone.  However, one of the nurses said I could move it to my thumb and this makes the typing MUCH easier as I just use my right thumb exclusively fore the space bar and all is good.
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In my last thought, girls are 29 weeks now. Officially non-micros no matter what happens now!  Still voting for them to stay put, but we are really coming along in terms of intraventricular (IVH) and NEC risks now.  AND, they are big enough to serve as a tray when I have to eat lying down to keep them on the monitor:
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So, I think the summary version is that we are still here in the hospital, but all three of us seem to be doing pretty well.  And no reason at this time to expect anything drastic to change.

Oh, and their last possible date is set, July 19.  And since they did finally change from shoulder presentation presenting/transverse upper, to breech/transverse, looks like definitely going to be the c-section route.

Monday, May 21, 2012

See this angelic face?




She was misbehaving on her NST, so we are over at L&D for some monitoring. She was having relative bradycardia events, dropping into upper 90s/lower 100s. Both girls got perfect 8s on their BPPs, but the perinatologist sent me over to L&D to monitor for a while longer to make sure that the bradycardia events stop.

Strip is looking pretty good so far at L&D though, so hopefully just here for a couple hours. He said if the events didn't reoccur that they would let me go, but if they do reoccur, we are going to need continuous monitoring.

He did some extra visualization and studying of her cord (that's Lefty) and it is actually positioned really well, so hopefully is just a fluky, benign thing.

The perinatologist was also able to confirm that my feeling that fetal motion was different this morning is due to repositioning as I theorized.

Being honest, I did get a little toward panic during the NST while the tech was noticing the bradycardias, but the perinatologist was very reassuring with his ultrasound examinations and doing this extra monitoring is really helping me to feel confident.

So, think behaving thoughts their way and if so, I'll update you with fun baby tiedye tomorrow from the house instead of medical!

And here's evidence of the girls conspiring:




UPDATE: well, they decided to do two more rounds of steroids since it's been four weeks and so here for 48 hours. But strips are looking good.

- Posted using BlogPress from my iPhone

Tuesday, May 15, 2012

Overachieving Fetuses

I'm not sure my brain is qualified to keep track of what I've updated here versus Facebook versus what I've told people.  But it does look like we are due for an update here.

With the exception of one 12-hour stint in L&D Sunday night/Monday morning, I've been successfully serving my bedrest at home.  That was the product of a flareup of the uterus of bitching.  I started contracting Sunday afternoon every 6-7 minutes which increased to every 5-6 minutes after a couple hours.  They were only about 40-45 seconds in duration, so it seemed very unlikely that they were causing cervical change, but since we are still pretty early gestationally and they were regular, they had me come in to get checked and run additional IV fluids on top of my water chugging.

Thought 1 from that 12-hour visit: I was dubbed level-headed and rational for the fact that I took myself.  My logic was that I was pretty sure that I was not having cervix changing contractions, it was bed time and it's much easier to deal with one of your parents leaving at bed time than both and barring an immediate emergency c-section, even in the worst case scenario we should have at least 2.5 hours of warning, so Paul could get up to the hospital.  The nurse said that most moms are too flipped out to think about what will be best for their existing children, so apparently I'm calm as a cucumber.

Thought 2 from that 12-hour visit: if you let them give you 5 of Ambien, you can actually get some sleep on the L&D side!

Thought 3 from that 12-hour visit: I think I've come to an understanding of my uterus of bitching.  It basically responds to anything being off or stressful on my body as a system by contracting.  The actual cervix changing ones from a couple weeks ago I really think were just because of the cold I had.  It does seem like a rational response from the body: body under stress, want to reduce stress, evict occupants.  The destabilizing factor this time is a bit more embarrassing.  I think I had a little constipation going on and that was enough to make my uterus declare that this wasn't what it signed up for and it was going to make things simpler!  So, I think the grand conclusion is that I just need to keep things easy on my body and the uterus of bitching will keep its trap shut aka not contracting.

Got discharged at 5:30 am, so was able to hit my normal Monday morning perinatology appointment.  The preterm nurse was out of town, so I didn't have to see her and went straight to the perinatologist which was very nice!  This was our first week of doing biophysical profiles.  The peri was willing to accept my statement that both achieved 15 by 15 accels during monitoring the night before, so we skipped the NST and just did the ultrasound part of it.  Both got 8 out of 8, but it took quite a while to get Lefty to show her breathing practice.

My favorite ultrasound picture of this appointment was Righty's hand and Lefty's feet together:

Also got a shot of someone's tongue:
 And someone yawning:

Because of the time waiting to get Lefty to show off her breathing, we also get profiles and face-on views of both babies.  And confirmed they are both still girls!

Also confirmed that I don't have the gestational diabetes!  But my vitamin D and calcium levels are low despite the supplementation, so we are stepping them up even more by tripling my vitamin D.  No changes are necessary to my calcium amounts because the theory is that getting the vitamin D levels up will increase my uptake of what I am taking.  And I need to take a belly shot as requested, but here's one from last weekend for now:

And this picture of Chiron sitting on Trajan amuses me and so I am passing it on:

Oh yeah, why did I call them overachieving fetuses?  Well, biophysical profiles don't normally start until 32 weeks and they both got perfect scores at this 28 week appointment and also achieved accelerations of 15 by 15 (meaning 15 beats for 15 seconds) which also isn't normally looked for until 32 weeks.  So, they are overachieving fetuses.  Good girls!

And in one last celebration, hitting 28 weeks will mean that they while they may still end up being preemies, they will not be micropreemies!  And even if they were born in the next few days (not the plan), they should be able to skip the Giraffe incubator phase in the NICU.  So again, go girls!

Tuesday, May 8, 2012

Mensch

You know how sometimes a word pops into your head?  Well, this happened to me the other day with the word mensch and I've decided to run with it.  I looked it up to check that my meaning was right and it was "a decent, upright, mature, and responsible person."  It's Yiddish, so I have no idea where I came across it, but I think it's a great summation of my goal in terms of my attitude and actions.

Rather than whining at restrictions, I think it's best that I be a responsible adult who can balance the needs of multiple people and timeframes and gets the significance of avoiding as much NICU time as humanly possible at essentially any cost.

I was discharged Friday and all is going really quite well with home bedrest.  Paul and my parents got me set up with a minifridge and a microwave upstairs and stocked with food, cutlery, drinks and more.  I've also got a serious number and variety of pillows to arrange different positions.  Add that I was planner and last pregnancy had purchased a hospital bedside table and a lap table in preparation (before everything changed), and I'm in great shape.  I've got a printer set up here and a friend who works at my office brought me out some things I need, so I'm in shape working as well.

Having Poppins definitely helps as she and Chiron are here throughout the day.  They go for walks and to the park and to the grocery store, but it really results in about two hours being the longest duration I go without Paul or Poppins being here.  Add friends who have helped with all kinds of things and life is pretty good!  It's also nice because Chiron stops by a couple times a day and plays which really brightens the day and being home allows me to read to Trajan before bed like normal which I couldn't do from the hospital.  And I've got pretty cute coworkers here:
Besides helping with boys, being home allows me to be useful as I can go through the mail and sort things that have been pulled out for goodwill including getting them entered into itsdeductible and lots of little things like that.  Feel much less useless.

On the girls front, all is looking well.  I should confess that I was secretly hoping/expecting that when I went to the preterm nurse Monday she would say that she thought the covering OB was in error and I hadn't had any cervical change, but she if anything actually identified more cervical change dubbing me one-plus, 30-50% effaced and soft where I had been completely closed when I had seen her before going into the hospital.  Since the covering OB had done a cervical exam at 8 am and then 5:30 pm of the same day, it was probably a silly hope, but oh well.

The good news is that I still have 4.4 cm of cervix which is enough cervix for two pregnancies and close enough to the 4.9 value in the hospital last Wednesday.  That and both girls aced their modified BPP, so we are really in good shape.  The perinatologist did think that I needed to stay on as complete a bedrest as possible as I was contracting some while I was there and if just medical trips are enough to make irritable, running around free could equal instability.  He also didn't like that preterm labor nurse noticed some pink blood after the cervical exam, but since I haven't seen any after, I'm going to go with that was just due to the exam.

We got a profile of Righty who is back to being the presenting baby.  She is vertex in the center/left (name is based on her placenta) and then Lefty is sprawled transverse up in my ribcage.  Note: I am not 8 weeks currently as the ultrasound is labelled.  8, 27, what's the real difference, huh?

 I thought I'd fixed the orientation in iPhoto, but apparently not... oh well!

The one thing I really miss from the hospital (well, besides some nice and amusing nurses) is the monitoring.  Seeing those lines a couple times a day just is nice:
BUT, these faces are nicer:



I'm blaming the Chiron bias here on the fact that he's much more cooperative than the others.

But in tying back to my mensch theme, yesterday one of the techs at the perinatologist said something that startled me, but also made me glad: "you're always in such a good mood and kind.  You're our best patient."  And this is a woman who has seen me at one of the worst moments in my life.  This made me glad.  Because really the best we can do is live our lives :-).  What will be will be, I'm here to celebrate it and optimize it!


Thursday, May 3, 2012

24 hours

If I can be good for 24 hours, discharge shall be mine, wahahahaha.  By good, I mean that I have to stop bleeding and have no new bleeding, contract minimally on the monitor and I guess feel like I'm good and stable?  We are theorizing that the bleeding was only due to a cervical ultrasound yesterday and so we went ahead and did a cervical exam today so I can have a calm cervix and get discharged.

I'm supposed to be good because my OB is leaving town and won't be back until Monday night and we established that I have a history of misbehaving when she is out (read maternity leave for her in version 2010).  However, I argued that one event doesn't make a history!  And so I can define a new trend.

I really think I am comfortable with the discharge.  I don't feel like I'm in preterm labor.  I feel like I have a pissy uterus that likes to express its displeasure with the world when anything doesn't quite go its way.  But I think it's bark is likely much worse than it's bite.  So maybe it's not a uterus of doom?  Maybe it's just a uterus of bitching?

I'm supposed to be very limited in what I do at home.  No lifting the boys in any time or condition.  No stairs just for giggles.  No housework.  The oddest explicitly stated limited that she gave me was "no shopping".  I'm taking this as meaning physically shopping, so don't worry dear friend Amazon! I can shower, bathe, go to the bathroom and go to doctor's appointments though and continue working from home similar to how I do in the hospital (and since the house is a mile from the office, this is MUCH easier if I need files or anything to be brought to me).  

I think I forgot to mention here that in celebration of finishing mag I bought a stroller the other day!  We have settled on a two-stroller solution to our stroller logistics and I purchased stroller number one.  This is a Baby Jogger City Select with the second seat.  I was feeling enthusiastic enough that I ordered the glider board thing as well.  This stroller will take both of the Chicco Keyfit 30s, but I haven't ordered the adaptor bars yet.  My theory for ordering this stroller now is multifaceted.  One, it allows us to sell the Bugaboo and it's accoutrements on Craigslist while still allowing Poppins and Chiron to get out.  Two, the weight limit on this stroller actually still includes Trajan, so he who has never really used a stroller much can get to play with it this summer and get that out of his system some before it gets into real use.  Three, the 2012s are out and have been out for a while and the 2011s haven't dropped in price and since there were so few changes to the 2012 model, they probably won't anyway, so it made sense to be the stroller to buy.

If you're curious, the second part of our stroller logistics solution that we have settled on is a Valco Trimode Twin with a Joey Seat for Chiron.  The BJCS will be more for Paul and I (who can sling or Ergo a third if necessary) and in the car while the Valco is mainly for leaving at the house and for Poppins to utilize.  The model years on the Valco don't seem to be updated and I want to get more on top of it's product line development and history before I buy one.  Also, the colors are giving me pause.  I think we'd probably do best with just the Raven, but it doesn't seem to exist, so maybe the Arctic?

Have we noticed the leaps of faith I've taken?  We are employing an entire person, I bought a stroller and we have girl clothing in our garage up to 3T.  We also now have three crib mattresses and are moving towards figuring out bunk beds for Trajan so we can turn his full-size bed back into a crib.

And in other news, my subtle pity party has ended as scheduled this morning and I'm back on board conquering the world and generally being competent and in charge.  It was a subtle pity party, but it still feels good to be over.

And for some random pictures because I think they are fun:

Chiron on the way to storytime with nanny yesterday in a picture she texted me:
The awesome alligator that one of my friend's fiance's crocheted and she brought to me.  He does amazing work!
My bed stuck up high by the exuberant Trajan.  He really does enjoy the hospital bed.
And my view, because well, ain't it awesome?

So, the conclusion is that my uterus and my cervix are both whiners and like to vent their agitation frequently, but they keep doing what they are supposed to do despite being big pansies.  Keep it up guys.

Wednesday, May 2, 2012

Am I irrational/insensitive?

I think I may be not seeing some other side of the coin, so here's wondering if there's something I'm not seeing and someone can make me see straight.

Context: Trajan had tonsils and adenoids out almost a week ago. He's been a complete trooper, but like clockwork, he started complaining yesterday of pain. They'd told us to expect this because of the cauterization. Paul also had vasectomy yesterday afternoon and I'm still living at the Seton Resort and Spa.

School has been giving Trajan his ibuprofen doses during the day, but they forgot the four pm yesterday, so he took some around six. He then woke up at midnight calling and asking for his ibuprofen and again at five thirty. He went back to sleep after each dose.

Here's the part where I'm guessing that maybe I'm just not seeing things from Paul's view and so need some help. Paul was irritated at Trajan for not wanting to take his antibiotics this morning. Then he went into a rant (to me, NOT where Trajan could hear) about being upset with Trajan for waking him up. My thought is Trajan did exactly what he should do and shouldn't have just laid there hurting.

I gave sympathy for it not being fun and being annoying to be woken up and acknowledged that Paul would rather sleep through the night, but in my mind, that's just a part of life. And getting upset about it does no good. And that he'd be MUCH better off to accept the reality he's in and optimize instead of getting mad at the kid.

Well, this upset him and he declared that I was saying that he didn't have a right to feel how he felt about things. This isn't really what I meant, I more just meant that feeling or doing something that has no possible positive outcome just doesn't make sense to him.

And then I said that I honestly didn't have empathy for him for having to wake up twice in the night to give ibuprofen. That I could agree that it wasn't fun and would be better to not, but that that honestly wasn't even TOUCHING on the list of things I'm currently concerned or worried about.

Also, what's sleeping through the night?!?

Somebody help me see the other side so I can understand better instead of just muttering things under my breath (at myself) about petulant child. Because I know he is Not. He loves those kids and does what is necessary and it just confuses the hell out of my brain that he seems to embrace the martyr aspects.

Help please!




- Posted using BlogPress from my iPhone

Monday, April 30, 2012

No news news

No news is the best kind of news, right?  Still hanging out at the Seton Spa and Resort, but am now ensconced in stable antepartum care.  I saw my OB this morning and the plan is to evaluate Thursday.  I was supposed to have my weekly growth/modified BPP scan today, but the perinatologist shifted it to tomorrow.  If that is good, plus I look good on a cervical exam which my OB does on Thursday and I can commit that I can adhere to real bedrest at home, then I will be discharged Thursday.  If any of these three conditions are not true, then I stay here.

Right now I'm trying to keep an open mind to either outcome.  Being honest, I'd rather be at home.  I really think between having Paul and Poppins, I should be able to be a good bedrester (and my mom is here for right now, but she has responsibilities out of town, so trying to plan without relying on her) and this would let me see the boys.  And bedrest is much better with dogs than without!

There are nice features of hospital bedrest as well though.  In particular, visitors!  I think people are more comfortable dropping by the hospital than a house, so I get to see more folks which definitely helps the mood.

I luckily am able to work full-time from either the hospital or the house which I think is crucial to my good spirits.  The house is a mile from the office while the hospital is 15 minutes or so, so the house would be a little more convenient to the poor soul whose job includes running me files, but she is a very good sport, so I'm sure she's happy to do either way.  I am not having Paul bring my hospital printer up here to get setup in advance of Thursday.  If they keep me Thursday, then I'll have him set it up.

It's odd being back in antepartum because I know the nurses and staff so well, but it is a nice familiarity and there is real sanity benefit in getting an NST every day and fetal heart tones every night.

It should be obvious from these last few paragraphs that I have no clear preference between being kept for the duration and being discharged.  I think the real truth is I'm on board with whatever the OB and the perinatologist believe is best for the girls.  If I could keep them out of the NICU for one week by being in a bed with my head slanted towards for the floor for a month, that would be more than a fair trade.  Seriously, it is so much easier to be the patient than to watch your child as the tiny patient.  Any hour we can decrease their stay in the NICU by is honestly an hour that's not just better for them, but for our entire family.  So, stay put girls.




The boys basically come here to eat and read books.  And Trajan likes to adjust all the bed buttons.  And there's unlimited pudding.  What's not to like?

Saturday, April 28, 2012

All is good...

I really thought I posted something two days ago, but it turns out that perhaps I'm not the best phone blogger while on mag and I didn't put anything.  So, the short version of it is that we are all doing well.  Chiron has less fluid draining from his ears, Trajan apparently is the toughest, most resilient fella on the planet and was completely unfazed by the anaesthesia, the surgery, the pain, the hospital or anything.  And the girls are both kicking butt and I'm getting the word "stable" applied to me.

Longer version:

Bless the commenter who pointed out that I should get a book about getting the tonsils/adenoids out and talk about it with Trajan.  I did and the book said to think about your kid and the degree to tell him or her and I made the decision that he was the type who wanted to know everything that we knew included how he was be gassed, the kinds of tools that they would use to cut, that it would hurt, etc.  He took one of his stuffed animals with him to the surgery, baby jaguar, and this friend also got to go back with him to surgery (since he needed his tonsils/adenoids out) and I'm told that Trajan did a fantastic job talking baby jaguar through what was going to happen.

This is his surly, presurgery pictury and I don't actually know the story on what the face is for.  He LOVES the hospital socks.  That's baby jaguar beside him.  They happily went back through the doors to surgery by themselves, so we were two for two this week for our kids happily heading back with nurses they didn't know for surger :-).

This is his first post-surgery shot.  He came up from the anaesthesia like a trooper (unlike little brother who fought the world like a tiger and was completely disoriented).  He was in love with these rainbow popsicles.  This is immediately after surgery, so he's still pretty high on the meds, but looking great and already explaining that it just feels like he's got a booboo in his throat and that getting your tonsils out is a good thing.
Pretty much immediately after that my mom (who went with Paul for part of the day, Paul stayed the whole day and night) asked Trajan if he wanted some quiet time.  Trajan agreed and even put the nap mask on and was back asleep in less than a minute.  When he woke up from this nap, he apparently seemed pretty much completely recovered.  So, apparently my apprehension was all for nothing and I should have stuck with the half of me that knows my kid and is frankly time and again amazed by him.  Trajan really is a superhero to me.

Just another example of him explaining things to baby jaguar.  The IV is how you let your blood drink, pretty cool, huh, baby jaguar?  Kid thought that getting to sleep at the surgery center was an awesome treat/trip reward.  And then was discharged the next morning with no events!

Little brother has so far been to see me both days and I dub him my cutest visitor to date:

They both came yesterday and I'm going to need to get things set up with books and toys and all again to make this place a fun visiting spot.  I'm highly confident I know what to do to make Trajan have a positive experience with my being here, but I'm much less confident with Chiron.  Any tips to make a very attachd toddler understand visiting his mom in bed would be appreciated.  So far, he's been very happy to just lay in bed with me, snuggle, read, talk and be.  But I also think that he has a little stomach bug that may be slowing him down.

Trajan is still wearing his surgery socks and his arm band and really enjoyed realizing that I had a hospital band too!
I think my dad probably has some pictures of the boys visiting yesterday when they came with Poppins and my parents, but I was much more focused on enjoying them and the like, so all I've got is that shot that shows he has a band too :-).

I'll have an update on me and the girls sometime in the next few days, but I think I may wait until Tuesday when it sounds like we are going to have more of a conversation about "the plan".  I was just moved from L&D to stable antepartum and am set up there.  This gets me a real bed instead of a delivery bed, the right to short showers and the ability to wear clothes instead of a gown.  It also shifts the girls to getting monitored once a day with an NST rather than the continuous or hourly monitoring that we've been doing.

I did have a conversation with a neonatologist the other day and it went pretty well.  There actually have been some substantial improvements in just the 16 months since Chiron was born.  Still hoping to go much longer, but it's a much rosier picture than the conversation I had at 24 weeks with a neonatologist last time.

Anything you want to know about the uterus of doom?  About the girls?  They've been doing great on monitoring, actually achieving 10 by 10 accels pretty often which is fantastic for 25 weekers and are doing everything we could ask of them. 

That's my ramble, what should I update?

Thursday, April 26, 2012

Deja vu, but not





Some aspects of deja vu, but more not than are.

Last afternoon just at the time I was leaving work, I started feeling some cramping. Nothing big, but just enough from keeping me from standing quite all the way up (and for clarity, by late afternoon I mean Monday). Continued on into the evening, but I was originally thinking GI. Went to sleep, but was getting woken up by ten or so with them and so finally talked with the oncall doc that night at one. When she asked what was wrong, my first answer was raving paranoia. We decided she was fine with a plan where I tried to go to sleep and if I could, I'd check in in the morning. Made it to sleep by four, so did so.

Called in and "my nurse" (I'm oddly possessive) went ahead and scheduled me with the same OB who I saw last time while "my OB" (see?) was out on maternity. It was nice because of both familiarity and the fact that she's one of my favorite three of the seven (yes, I've had them all more than once now. I would like to take a moment to point out that I saw two others OBs at all throughout the entire pregnancy and delivery with Trajan and they were both post partum).

She said I was dilated fingertip whereas notes indicates I was completely closed Monday and that I was 30% effaced and soft. Not a big deal and itself, but enough to earn the monitor in office. Which in turn showed enough contractions to earn some monitoring at the hospital. Urgent enough to not go pick anything up or anything, but calm enough that I could drive myself over the two blocks.

She came over at lunch time and said that it did look like I has some irritability going on with contractions every 4-6, but didn't look like a steady pattern of true preterm labor. And she asked if I was good with staying through the afternoon and she'd discharge me at 5:30 or 6.

I actually calmed down during the afternoon contraction wise, so was looking good when she came in at 5:30. Then she did a cervical check. I was a full one and she switched language from discharge to steroids, mag and notifying the nicu.

To be clear, one centimeter in itself is not a big deal, particularly being multiparrous, I think it was the pattern of change plus the 29-weeker that makes it more of a deal. I will try to confirm that with my OB tomorrow.

Good news: mag isn't phasing me at all this time. Last time, on the initial magging at least, I had trouble focusing my eyeballs. No issue this time.

Good news 2: I'm confident with the procedures around here and how to say go to the bathroom disconnecting the three monitors, unplugging IV, unclipping blood pressure cuff, etc.

Good news 3: having the doc that I had today means no foley catheter. She feels it is more an infection risk than any possible advantage, thus the peeing.

Great news: they're both alive. This OB is the one I dub smart but without any much bedside manner and she declared early in the process of starting the mag that we made it further this time. I may have rolled my eyes (yes, 25 beats the hell out of 24, but it's still not what I'd want at all), but I think she missed the greater point, they're both alive. See those two fetal heartbeat lines in the image? Woot!

Crappy news: Trajan is still having his tonsils and adenoids out tomorrow. This honestly makes me almost feel sick. I have always been with him for everything medical and this is going to be hard and I can not be there for him. I couldn't take him on our planned special grocery store tonight. I can't help him come out from anaesthesia. I can't discuss vomiting possibilities with the anaesthesiologist pre surgery. I can't help console him through the first few days. I can't work at getting him to drink sufficient quantities. I can't be there.

My parents are in town, Paul is off and we have Poppins for the weekdays. I know the boys will be fine and don't need me, but that logical thought doesn't help much.

His checkin time is 8:45 this morning, four hours.

New bag of mag going on. Should see my OB sometime in the next day.


- Posted using BlogPress from my iPhone

Monday, April 23, 2012

New Territory

So, I wrote the title for this about a week and a half ago, but haven't updated anything. Not because anything is wrong, but just been too frantic with work getting things done to have any time between work and the boys and life.

All is good.

On the girls' front, I actually ended up calling my OB's nurse the next morning and talking to her about the preterm clinic.  And totally lost the capacity to speak without crying which is something that happens to me about once every half-dozen years.  Luckily, she's a very patient and kind soul and waited me out and helped me get the whole story out.  The end result was that she talked with the OB and they declared that I didn't have to go to preterm clinic anymore.  However, by that point I'd come to the conclusion that anyone could say something stupid and perhaps I should give her another chance.  So I went ahead and went the next Monday morning and it was fine.  I figure that it makes more sense to follow the recommended protocol as long as it isn't causing me to stress out unnecessarily.  Went again today and I would actually go so far as to say that it was a positive experience with the preterm nurse, so hopefully things will stay that way.

With my flipout I actually ended up seeing my OB last Thursday where she patiently dealt with me 25 item long list of questions that I'd developed as part of my flipout.  This was not the first time I'd done this to her, but the first time she saw it printed out instead of just on my phone or laptop screen.  I kind of thought maybe we'd just get through a few of them and save the rest for next time, but she actually did the whole dang list!

She also talked with the perinatologist and got me set up for weekly ultrasounds with the perinatologist who strikes me as the best.  Until 28 weeks, he is just going to assess their amniotic fluid, look at their heartbeat patterns and generally assess their movement.  Then, starting at 28 weeks he will do a BPP each week.  And at some point NSTs get added in. 

While there is definitely a risk of recurrence in stillbirth due to cord accidents, I'm pretty sure they are doing most of this extra monitoring to keep me sane more than because they think it will make a difference in the girls' outcome.  Honestly, I'm ok with that. 



Here's their heads this morning.  We are definitely in new territory as we are past the point of the demise in the last pregnancy.  ALso, these girls move around a LOT.  At 20 weeks, they were stacked both transverse with the right one lower.  Then at 24 weeks, they had switched and the left one was presenting and she was vertex along the left side of my uterus with the right one stretched across the top transverse with her head to the right.  And then a week later, the right one was back to being presenting and she is breech on the right side of the uterus with the left one transverse across the top of the uterus!  It's anybody's guess where they are going to end up!

We dropped our boys' 0-12 month clothing off with friends yesterday, it was impressive.  Still pretty amazed by that purchase.


On the boys' front, it's surgery week.  Chiron is getting tubes tomorrow and then Trajan is getting his tonsillectomy/adenoidectomy on Thursday.  

Chiron is still adorable:
Trajan was an adorable ringbearer:
Poppins is still going great.  I had a great time chaperoning Trajan's field trip a few weeks ago and CHiron went to his first birthday party for one of his friends.

Life is good, and perhaps now that I've acknowledged I've failed to write about all kinds of things, I'll get back on an updating schedule.  I think it was largely trying to get work ready for me to be out for both surgeries that was kicking me backside, but I do still have a lot of work for the next few weeks, so it's entirely possible that I'll fail as an updater. 

Random note: we have now had 19 or 20 ultrasounds this pregnancy and I'm not even remembering to take pictures of all the shots we get, much less upload them.  How's that for crazy?

In conclusion, I'm sticking with the idea I opened with, all is good.

Friday, April 13, 2012

And I lost it...

So, I've held it together very well.  Hell, I'm not even sure I'd say I've been holding it together, because it's been pretty easy.  I'm rational.  I understand things happen.  And that doesn't mean it will happen again.  So, I've been very fine.  I've taken to thinking of these two as going to be here at some point.  I've entertained the idea that it will be via the NICU possibly, but really expecting them by 37-40 weeks as a part of our day-to-day life.



Then I lost it.



I don't know if it's being at the same gestational age or realizing that I'm going to have to go for the longest stretch in the history of this entire pregnancy without an ultrasound or the preterm labor nurse upsetting me, but I've lost it.  It was definitely the preterm labor nurse as the trigger, but I don't want to put it all on her.



How do I know I lost it?  I called my OB's nurse this morning to confirm that something the preterm labor nurse said I didn't need to worry about and I ended up where I could barely (if that) talk because I was crying and just had lost control.  I'm sitting here typing with tears running down my face.  Thus, I say I've lost it.



To backtrack: yesterday I had an appointment with the preterm labor nurse and then an OB appointment.  The preterm labor appointment was in the morning and went great in terms of the babies and my status as a pregnant person.  Both had good heartbeats.  Blood pressure was good.  Cervix is long and closed, yeah!  OB appointment also went well with both looking good on the quickie ultrasound and she also checked out my cervix and agreed it looked great.  Four cervical checks in 88 hours, I declare my cervix to be pageant queen popular.  Everything medical and related to this pregnancy at both appointments could not have been improved upon.



So, why the crazy?  Well, the preterm nurse took me back to last time.  I had an appointment with the perinatologist and her scheduled for a Thursday, but after feeling jumangi drums and just so much absurd amounts of motion that it distressed me, they had me come in Wednesday to check them out.  They did the 24 week anatomy growth scan (24 weeks would be Friday) and everything looked great.  Viable and perfect were words used.  Yeah, ain't that almost funny?



She brought up this appointment and what I had felt and brought up that this was likely Aurelia doing her best to try to get oxygen.  The nurse even said to communicate "hey mom, I'm not getting air."  Yup, said that to me. 



Yeah, that's a kick in the ass.  But you know what, there's nothing we could have done differently.  There's nothing we could have done to help her.  And if I'm being completely honest, the outcome of two 24&0 weekers one of whom has been experiencing oxygen deprivation likely would not have been a better outcome than where we have ended up.  But still, having someone say that yes, that meant something was wrong and I was the only one capable of getting the message makes me sick.  And now I'm supposed to be watching for fetal thrashing?



I meant to ask the OB about it yesterday and we got to the point of saying that the preterm labor nurse had upset me (though I kept it completely together with her oddly), but got distracted and never got into why.  Go attention deficit.



Also, the OB had convinced me early on this pregnancy that we weren't certain this was a cord accident.  And this I think helped with my piece, because cord accidents are one of the causes of stillbirth that has recurrence where many stillbirth causes are flukes.  So, now I'm back to that worry about the recurrence rate. 



Oddly, I just realized that I never changed the little summary box of "our world" that's in the border of the blog page to not say cord accident when the OB convinced me that the neonatal nurse practitioner told me it as a certain cause to make me feel better, but they couldn't be certain.  I will say that cord compressions definitely fit well with the symptoms and the experience of her motion.



And I'm feeling much better post this rant/ramble and a conversation with my OB's nurse, who is an amazingly patient and kind soul, this morning. 



I have the 24 week anatomy/growth scan with these two on Monday and then I will see the preterm lady again.  And then I enter my new distress as the OB set my next appointment for four weeks and the perinatologist will set my next appointment for four weeks, so I will have to go almost four weeks without seeing them on an ultrasound when I haven't gone even two weeks so far this pregnancy.  The preterm labor clinic will do the Doppler, but even she has said that she's not 100% certain she's identifying them separately.  It may seem odd, but the idea of possibly not knowing one is dead for weeks is almost more upsetting than the idea of one being dead.  So, I anticipate some basketcaseness for the next four weeks.



I'm not ok, but I'll make it.

Afterthought: I am very lucky that I'm signed up to work pizza Friday at Trajan's school today. Two hours of serving up pizza and fruit and talking and playing with three lunches of kids and the world is always a better place. I'm still convinced I'm pretty blessed and lucky, even if I'm a bit crazy today.

Thursday, April 12, 2012

What autocorrect says about me

Some mistypings and the word it chooses seem revealing:

Trying to type on --> OB
Trying to type you --> uti
Trying to type of --> OG
Trying to type one --> OB's
Trying to type next --> NEC
Trying to type we --> ER

Just my little amusement today.

Thursday, April 5, 2012

Preterm Labor Clinic Begins...

My OB's practice sends their twin pregnancies to the preterm labor clinic at the perinatologist starting at 22 weeks.  I did it last time, but only made it to three visits before "it all changed."  Had the first appointment for this go round today and it went well.  Was greeted with a deja vu comment.

I'm up 15 pounds now, which is less than they'd ideally want, but is enough that she isn't worried and says to just to keep up working on it!  I'm 22 weeks and I'm measuring 31 weeks based on fundal height which interestingly is the exact same measurement that I got last time at 22 weeks with her!

We talked through all the activity guidelines and reviewed preterm labor symptoms.  She wants me to work towards working part of each day from the house sooner rather than later, so I need to get my technological ducks in a row.  She also wants me to really minimize my carrying of Chiron as much as possible.  Don't need to eliminate entirely, but cut back as much as I can.

After the discussion, she had me leave a urine sample and then she measured the fundal height, listened to the heartbeats with a Doppler and then did an internal exam.  My urine was excellent, an odd phrase to hear, but I'll definitely take it.  And that coupled with a 120/60 blood pressure (which I think is great for me in a OB/perinatologist setting at this point) indicates all is well on the preeclampsia type front.  Righty had a heartbeat at about 150 while Lefty was around 160.  And my cervix is still very long, she said she would believe it's still around the 5 cm that it was the last time we measured, and the inner part is completely closed.  The outer is open, but that's just because I've had a kid before.

The only thing she absolutely ruled out is that she says I am NOT to be the one to stay with Trajan for getting the tonsils out.  She says that that would be a perfect storm nightmare to cause preterm labor.  She actually had her son's out at the exact same place with the same surgeon a few months before and she adamantly said no.  I can be there during the day for the procedure and all that, but I need to leave for the evening hours.  I'll need to talk with Paul (he has a webcast at work this morning), but I imagine this isn't really an issue and he can just stay with him.  She also recommended that we do get the alcohol-free version of the pain meds for a reason I hadn't thought of.  It burns less when they swallow it, so kids are more willing to take it, so it's less likely that we will fall behind his pain and have issues with that.

Everyone I talk to is making me more and more nervous (not sure that's the exact right word) about getting the tonsils/adenoids out and the degree of discomfort, pain and just plain suffering Trajan will experience with it.  I'm cautiously optimistic that at 4.5 he is much more capable of reasoning and discussing than most of the kids who are at 3 and so perhaps that will help.

Look for another ENT update this afternoon or tomorrow on the Chiron front! (and no, that isn't really an exclamation point of excitement, but it's kind of like the theory of you either have to laugh or cry.  I am going with laughing and living.  And glad that Poppins is in place so both of us have been able to work this time).

And to finish up the preterm labor thoughts, I will see her weekly until 37 weeks or things hit the fan.  She is looking for continued weight gain, clean urine, good heartbeats, cervix staying long and closed and me reporting that I'm cutting back more and more on activities. 

She gave me a sheet just like last time that outlines the key dates (I'd already converted my old one, but just for fun, here they are:)
  • April 4 - 22 weeks : Need to be resting a minimum of 1 hour midday and 2 hours early evening and begin decreasing all activities at home and work.
  • May 16 - 28 weeks: Uterus will be full-term size and contractions more common.  Need to work a maximum of 4 hours a day in office (if no appreciable work at home).  Can work more hours from a reclined position.  Minimum rest intervals of 2 hours midday and 2 hours early evening.  Curtail activities much further
  • June 13 - 32 weeks: "Big Goal to Pass" aka it's all bonus from here.  Moms can tolerate very little activity and no activities of any type should be undertaken lasting over 2 hours.  Work should solely be from home and a reclined position.  (She said I could run up and get stuff, putter around the office for possible an hour a day depending how I'm tolerating)
  • June 27: 34 weeks: Will not need steroids to mature babies' lungs, will not give medications to stop labor and babies likely in NICU about 2 weeks
  • July 11: 36 weeks: Typically no NICU time
  • July 18: 37 weeks: Ideal delivery timing
This whole long list is a little funny as last time I didn't make it past the very first entry before I was no longer free and loose in the world.  But I'm thinking positive!  And always laughing.  No matter what, laughing.


And one last thought.  I was wrong about something.  I'd written before I got pregnant that the reason that I wouldn't ride this ride of pregnancy again for a round three is that my sanity couldn't handle it if something went wrong and in particular if we last another baby.  It turns out that I'm pretty sure that that is not true.  I obviously am not rooting for it, but I have had time to really think about what that would be like and I think I can say with pretty high confidence that I would make it.  That I would process it, work through it and come through it still me, just a little bit different.  I am strong enough.  This may seem a warped thought, but knowing it helps me.

Monday, April 2, 2012

Damn, fun with tonsils and adenoids

So, I was figuring I'd write a quick little post of the boys' getting haircuts yesterday, but instead it's surgery.  Yes, for my kid who has had two fevers in his life and one stomach bug, because apparently life is too boring :-).

I'd made him an appointment with the ENT because his dentist had recommended that we have him evaluated by an ENT due to his mouth breathing, growing overbite and large tonsils.  I really kind of expected the ENT to possibly scoff at us a little for being there and at most recommend a wait and see approach.  Nope, not at all.  He was in the room maybe three minutes and had asked Trajan some questions, looked in his throat and observed him and then asked me if I wanted the bad news then or in a few minutes. I voted for then and he said, "he's going to need both the adenoids and the tonsils out."

Apparently he pretty clearly has some obstruction due to his lymphatic tissue.  The ENT said that it's not at all the size of the tonsils that makes him go to removal, but more the mouth breathing that is pretty much obligate.  Apparently some notes in his chart from the allergist also supported the idea.  He said that if we wanted, we could first schedule him for an overnight sleep study to document that he is having breathing events, but that he could pretty much guarantee that with Trajan a study would find episodes and that sleep studies are not a fun walk in the park either.

I'd already checked in with our primary and she sounded like removing them could be reasonable and did support that the ENT is a good one, so I figure let's do it.

He sent the nurse in to schedule it and her first comment was, "looking at you, I'm thinking we need to schedule this sooner or later.  Do you have a couple weeks left?"  Seriously woman, I'm 22 weeks.  I realize I'm a bit large for 22 weeks, but I sure as heck don't look like 37 or anything!  I for some reason have harsher standards for medical professionals.  However, I did agree that sooner is better than later.  Both because our world will get more crazy and because the younger you are, the easier this procedure is supposed to be.  But he's ringbearing in a wedding on April 21, so we scheduled for April 26 as they apparently only do them on Thursdays.

It's a one-night stay and then lots of fun with fluids and soft things!  They said that some kids are back out playing by the time they are discharged, but some take as long as 7-10 days.  He has the week of the surgery off, so will hopefully just miss part of the next week of school.  We are also hopeful that he will be better enough by the next the week that he may still need to lounge and "take it easy" (i'm translating to be allowed to watch unlimited tv and drink and eat things with lots of sugar), but will be good enough that he'll be okay staying with Poppins during the day. 

The ENT said that most kids who present like him become much happier and are much better behavior-wise after the procedure as they aren't getting particularly restful sleep.  As he's a generally pretty good and easy kid, I'm thinking this could make him absurdly easy if it's true! ;-)  That said, he does definitely have his moments (Mr. Hyde) where it's like he's a completely different kid.  It's probably being overly optimistic to think that this will help that, but a girl can dream, right?

The ENT also said that at this age no myofunctional or speech therapy will be necessary.  He should simply revert to breathing through his nose as soon as the swelling has gone down since that is the body's "natural way".  He mentioned the same thing the dentist did about this making oral surgery as a teen less likely and having been through that fun of having both jaws broken and being in the hospital five or six days, I think if there's a CHANCE this will allow him to escape that, it's worth it.  I also still have no feeling in my chin or lower lip, so more reason to avoid that much more substantial surgery.

He sort of knows it is coming, but we will need to definitely have a discussion with him to make sure he knows what to expect.  I'm thinking I can couple it with a special grocery trip to pick out things to eat and drink post-surgery.  Any other tips, anyone?

Farm Day!

Some friends of ours have a horse farm and we went out this weekend.  Trajan is a huge fan, but we actually haven't been out in something like a year?!?

I was smart and on the way there we went by our local and awesome kids shoe store and got Chiron his first pair of shoes explicitly purchased for him.  He likes them!  He generally just had a great time of it, walking and meeting animals and people and just enjoying life.  And nature is pretty cool.
We took Gretchen, the younger dog with us and she proved again that she really is a champion farm dog.  No leash needed, gives horses an appropriate amount of space, doesn't overreact to noises and things and just generally has a great day of it.
We did see another aspect of her role as a farm dog and that was as a little boy supervisor.  Wherever Trajan roamed, there she'd be:
Those two dots to the left of the tree in the center are Trajan and Gretchen :-).  He yelled back at about this point "I found a lot more nature!"

Since it had been a year and a half or so since we had been out there, Trajan was impressively older in terms of doing things.  It's funny how it's the little things that surprise you at times.  The fact that without seeing anyone do it he knew how to climb up a fence and hang on it just kind of startled me:


He also went riding.  In the past, he's mainly ridden the little pony (with the exception of the one time he insisted on riding a big one and so we put him up on a Grand Prix horse.  He promptly declared he was good with Tex, the pony then), but we actually started him out with a medium sized horse this time.
He got her from the pasture, led her into the barn and crossties, helped some with brushing her down and waited while her tack was put on.  I insisted that he learn some, so he learned the word mane and frog.  Then it was out to the mounting block to learn how to mount and then to the ring.

(Someday I will figure out a way to put pictures together so they don't eat up space like they do if uploaded individually, but also aren't cut off like they are when I make collages now).

For some reason the other videos I shot are showing up sideways despite the fact that I held the phone the same way, so who knows.  This video is of him on the flat.  He also worked on going over some poles and a low oxer.  Those went well.  Then somehow the brilliant idea occurred to have him go over a flower box jump.  Well, this resulted in a real jump and perhaps a bit of an agitated buck.  Kid is super athletic though and though he went flying in the air, he kept his hands on her and stayed pretty aligned with the horse.  Our friend who owns the farm and was in the ring with him sort of caught him in the air and between them he was right back in the saddle on the other side.  He thought this was amusing rather than traumatic, so that was good!

After we played around the farm some more, we ended up back in the barn and he went for a quick bareback ride around the farm on the pony.  That's him on Tex in the last picture in the collage.  Perhaps the post fascinating part of that is the crazy cat they have at the farm!  He's about one and so we hadn't met him before.  When we got there, I forgot to remind Trajan of the rule that he is allowed to roam pretty much anywhere on the farm, but he shouldn't go in the barn without an adult.  So, I ended up following him (with Gretchen) of course into the barn early on and we found this cat.  Who started to play with Gretchen and followed us down to where we were sitting waiting for our friends.  And proceeded to play and romp with Gretchen. 

I'm bringing the cat, Kitty Boy, up because when Trajan was out on his bareback ride, the cat followed them along and kept divebombing the pony!
How wacky is that?!?

Trajan also rode his Daddy:


Chiron was so tired by the end of the day, he'd had about an hour long nap on the way there and when we first got there, that he literally fell asleep in our friend's daughter's arms, something he hasn't done in months.

And stayed awake being passed between a number of people and then being placed into his carseat.  Even when our friend's daughter's eight pound Yorkie ran across him in the carseat, he stayed asleep!
Good day had by all!